1. Patent Oppositions: re-igniting a campaign for fairer access to drugs

    Last year, we blogged about the work we did for Médecins Sans Frontiers, suggesting improvements for their Patents Oppositions Database.

    Need a quick recap? Two things you should know:

    1. When medicines are re-patented, it prevents the development of generic versions. One company retains the monopoly, and costs remain high, where otherwise the generics would have provided a cheaper option.
    2. Médecins Sans Frontiers support those who challenge patents in court by providing resources, such as arguments which have previously succeeded in similar cases, via their Patents Oppositions Database site.

    As we explained in our last post, it was clear to MSF that while the idea of the Patents Opposition Database was sound, it relied on active take-up from community members — members who were often too busy to engage in a site that was anything less than simple and inviting.

    That’s when they came to us, first for consultation, and then to put our suggestions into action. It’s exactly the sort of work we enjoy: it potentially changes lives, and it involves using good design and coding to do so.

    Getting to the bottom of things

    MSF had a good idea of why their site wasn’t enjoying the kind of take-up they’d hoped for, and in that initial phase we were able to confirm this through research.

    As we talked directly to a number of the site’s users, and gave the site a rigorous analysis ourselves, we found some recurring frustrations:

    • It was difficult to find content
    • While there was patent information from a variety of sources, linking it together was a chore
    • People weren’t contributing to the site because it took too long to do so
    • There was no feeling of community, so users didn’t feel a strong compulsion to help one another

    And that pretty much brings you up to speed with where we were last time we blogged this project. Since then, we’ve been beavering away on making improvements.

    How do you encourage community?

    People tend to look at community as a nebulous concept: all the more so with online communities, where success is often seen as a coincidental factor rather than one that you can foster.

    But for this project, it was clear what to do. And the site has the odds stacked in its favour: visitors have a very strong motivation to contribute, so we just needed to make that as simple as possible.

    We worked on two broad areas: the site’s design, and some new core functionality.

    New design that removes barriers

    • The first thing to do was to ensure the site met modern standards, breaking down any impediments to participation. It’s now responsive (ie it displays well on any size of screen), clear, and accessible.
    • Then we made sure that, when visiting the homepage, it was obvious what to do next. This was achieved with a prominent search function, and some clearly signposted ‘next steps’.
    Patent Oppositions Database homepage: before (left) and after (right)

    Homepage: before (left) and after (right)

    • We wanted to reward people and organisations for playing an active part, so we created profile pages which highlight their activity.
    • Documents are the mainstay of the site, so they’re now highlighted as the main resource on any pages where they’re relevant. We also tidied up the way they were being stored, so they’re consistent across the board.
    • We tackled that user frustration and made sure that patent data from sources such as WIPO and EPO were cross-referenced and brought together.

    New functionality that fosters participation

    • Users can now view and mark up documents right on the site, and then share what they’ve discovered with other users, thanks to the ‘add an annotation’ function.
    What an annotation looks like on the Patent Oppositions Database

    Making annotations is really simple

    • We created an email alerts service, drawing on our experience running TheyWorkForYou, which sends out thousands of alerts to people tracking topics in Parliament. This kind of alerting system is great for bringing people back to the site at their own convenience. So now, when there’s a new case concerning a specific drug, anyone with an interest in that drug will receive an email. If someone leaves a note on one of your annotations, you’ll know about it too.
    • Search is absolutely crucial to the site, so we implemented a powerful new search facility which can look through not just the site’s own pages, but the documents it hosts, too. We added filtering tools to give the user more control over what they see.
    Patents Opposition Database search before and after

    Search, before (left) and after (right)

    • Advanced users can also obtain search results in a standardised csv format for download, so they can be used for their own reporting, or even as a data source for other sites.
    • We created a new ‘call for help’ service, so users can ask the community to contribute to a patent opposition. These become touchpoints across the site, where users are urged to help if they can.
    A call for help on the Patent Opposition Database

    Need some help? Put the call out.

     

    What’s next?

    Our improvements were presented at the AIPPI (International Association for the Protection of Intellectual Property) World Congress, and the new site is now live at www.patentoppositions.org.

    Of course, we’ll be keeping an eye on its performance, and until April we’ll be refining and tweaking until we know that the much-needed community is up and running happily.

    Image: Taiyo Fujii (CC)

     

  2. How good design can save £millions in medicine costs

    International emergency aid charity Médecins Sans Frontiers are one of the biggest purchasers of medicine worldwide, and naturally it’s important that the drugs they buy are cost-effective. Where possible, they choose generics—white label medicines that contain the same ingredients even if they don’t carry the well-known brand names: think ‘ibuprofen’ or ‘aspirin’ rather than ‘Nurofen’ or ‘Anadin’.

    But when a specific medicine is only available as a patented product from a big drugs company and with an equally big price tag attached, MSF, like everyone else, has little choice but to pay.

    Curiously, this turned out to be a problem that can be solved, in part, through good web design. Here’s the story.

    Opposing patents

    Obviously, drugs companies have an interest in keeping their medicines under patent. As MSF explained, patents, and in particular the practice of ‘evergreening’ them (extending their life indefinitely by making slight modifications to the medicine’s make-up), give pharmaceutical companies a monopoly on pricing, and can impede access to patients who would benefit from them.

    MSF’s online project, the Patent Oppositions Database (PODB) is a resource for helping people challenge medicine patents. PODB helps groups around the world to find each other and work on cases together, and to share previous examples of art and arguments used in lawsuits which may help others in future oppositions.

    The site was already up, running and functional, and the concept was sound. But it wasn’t attracting much take-up. On analysis, it became clear that this was because there was no focused experience on the site, encouraging users towards the core interactions which would power the whole concept of collaborating and sharing knowledge.

    Where design came in

    PODB process map

    MSF asked us to suggest improvements that would enable groups to communicate about specific cases, and to improve the sense of community. Our solutions will add intuitive user paths that lead people to existing opposition cases and the information they need, then encourage them to join in by placing discussions and information about contributors on the page.

    It’s crucial for MSF that the project reaches its full potential, and with the in-depth design changes we’ve suggested, and have now been asked to implement, we know it will.

    You can read more about how we approached this project in our latest case study, over at the mySociety Services website.

    Image: Procsilas Moscas (cc)

     

  3. Get involved with Poplus

    PoplusThe open federation for sharing civic tech, Poplus, is inviting YOU to get involved.

    If you’re not sure what Poplus is, or how it works, there’s a great opportunity coming up to learn more.

    On Wednesday February 18th there will be a Poplus live online Hangout which everyone is welcome to watch via Google Hangouts-on-Air. The specific aim of this Hangout is to invite new people and explain just what Poplus is. There will also be the opportunity to ask questions.

    Steven Clift, Poplus’ Engagement Lead, writes:

    Poplus is a global federation for the next generation of civic tech. We share knowledge and technology to help our organisations help citizens.

    We do this through collaborative civic coding. We share reusable open source civic technology components. We leverage open government data or make our own across many countries.

    This online video-based event specially invites those new to Poplus. Everyone is welcome.

    RSVP here to watch live (13:00 UTC, see your local time) on Feb 18.

    The presentation includes Tom Steinberg with mySociety and a few project participants from around the world on the Hangout-on-Air “stage.” Questions will be taken via comments on the Hangout event page. The video stream is one-way, commenting two-way.

    About Poplus

    Founded by CiudadnoInteligente.org based in Chile, and mySociety.org based in the UK, the international civic tech federation was launched at the first PoplusCon in April 2014.

    Watch this short video to see civic tech collaboration in action! Visit Poplus.org (in English/en español) for full details.

    How to get involved

  4. It’s good to talk

    yarnbomb

    On Wednesday we had our first community virtual hangout for Alaveteli. The idea of a drop-in virtual meeting was inspired by meeting community members in person over the last few months.

    Louise visited AskTheEU in Madrid and mySociety’s International Team spent time with community members from Australia, Spain, Canada and many other countries at Transparency Camp. Henare’s session with David Cabo and Michael Morisy from MuckRock on FOIA at Transparency Camp provided an inspirational opportunity to talk more with the people running Alaveteli sites.

    We wanted to have a regular time where we could share experiences of running FOI sites in general and installing the Alaveteli software in particular. Though everyone that joined was running an Alaveteli install, we’d love for people interested in running a site or who already run a site using different software to join future hangouts! Your experiences could shed light on issues that people might be having, and vice versa.

    It was great to learn from groups in Romania, Canada, Norway, Australia and New Zealand. We had representatives from three new or fairly new installs as well as sites like Right To Know and FYI.Nz which have been running for a couple of years, each with their own stories of success and pinch points where things have been more difficult.

    What did we learn?

    First off, we have a great, open community that’s happy to discuss problems, suggest solutions and speak about what it’s like to run an FOI site in their countries. So thank you for that!

    Despite differences in laws across the world, people do face similar issues in driving awareness of FOI and FOIA sites. People share ideas for positioning FOI sites came up such as using them to investigate specific issues that are current and getting a lot of press. For example the issue of detention logs in Australia (which you can see more of here and here) helped Right To Know raise more awareness of both the FOI law and the site. According to Henare:

    “The news buzz made people realise they had FOI rights, which isn’t general knowledge in Australia. They started thinking “oh, I could put in a request about X””

    The next hangout will be in around a month and we’re going to set an agenda to talk about different ways to increase usage and awareness of FOI sites, what has worked, and what hasn’t. All details will be posted on the google group, please join if you want to attend!

    We also got some great feedback on places where we can support people launching and running an Alaveteli install – by making it easier to make a complete set of translations for a particular release of the software, and by making the process of upgrading to a new version easier in general. All this input is really useful to us, especially as we’re currently updating the documentation on Alaveteli.org to make it easier to get started.

    Finally we touched on the alaveteli-users google group as a place where people can share their issues, stories and successes, and get input from other FOI practitioners. It’s useful for tapping into the expertise of teams in other timezones! This seemed like a pretty decent plan when it was mentioned, do let us know what you think!

  5. Unofficial Transcripts: mySociety is seeking councillors, council officers, local activists and hyperlocal bloggers interested in Hansards at the local level

    One of the key differences between the UK’s national parliament and its local governments is that Parliament produces a written record of what gets said – Hansard.

    This practice – which has no actual legal power – still has a huge impact on successful functioning of Parliament. MPs share their own quotes, they quote things back to one-another, journalists cite questions and answers, and every day TheyWorkForYou sends tens of thousands of email alerts to people who want to know who said what yesterday in Parliament. Without freely available transcripts of Parliamentary debates, it is likely that Parliament would not be anything like as prominent an institution in British public life.

    No Local Hansards

    Councils, of course, are too poor to have transcribers, and so don’t produce transcripts. Plus, nobody wants to know what’s going on anyway. Those are the twin beliefs that ensure that verbatim transcripts are an exceptional rarity in the local government world.

    At mySociety we think the time has come to actively challenge these beliefs. We are going to be building a set of technologies whose aim is to start making the production of written transcripts of local government meetings a normal practice.

    We believe that being able to get sent some form of alert when a council meeting mentions your street is a gentle and psychologically realistic way of engaging regular people with the decisions being made in their local governments. We believe transcripts are worth producing because they show that local politics is actually carried out by humans.

    The State of the Art Still Needs You

    First, though – a reality check. No technology currently exists that can entirely remove human labour from the production of good quality transcripts of noisy, complicated public meetings. But technology is now at a point where it is possible to substantially collapse the energy and skills required to record, edit and publish transcripts of public meetings of all kinds.

    We are planning to develop software that uses off-the-shelf voice recognition technologies to produce rough drafts of transcripts that can then be edited and published through a web browser. Our role will not be in working on the voice recognition itself, but rather on making the whole experience of setting out to record, transcribe and publish a speech or session as easy, fast and enjoyable as possible. And we will build tools to make browsing and sharing the data as nice as we know how. All this fits within our Components strategy.

    But mySociety cannot ourselves go to all these meetings. And it appears exceptionally unlikely that councils will want to pay for official transcribers at this point in history. So what we’re asking today is for interest from individuals – inside or outside councils – willing to have a go at transcribing meetings as we develop the software.

    It doesn’t have to be definitive to be valuable

    Hansard is the record of pretty much everything that gets said in Parliament. This has led to the idea that if you don’t record everything said in every session, your project is a failure. But if Wikipedia has taught us anything, it is that starting small – producing little nuggets of value from the first day – is the right way to get started on hairy, ambitious projects. We’re not looking for people willing to give up their lives to transcribe endlessly and for free – we’re looking for people for whom having a transcript is useful to them anyway, people willing to transcribe at least partly out of self interest. We’re looking for these initial enthusiasts to start building up transcripts that slowly shift the idea of what ‘normal’ conduct in local government is.

    Unlike Wikipedia we’re not really talking about a single mega database with community rules. Our current plans are to let you set up a database which you would own – just as you own your blog on Blogger or WordPress, perhaps with collaborators. Maybe you just want to record each annual address of the Lord Mayor – that’s fine. We just want to build something that suits many different people’s needs, and which lifts the veil on so much hidden decision making in this country.

    Get in touch

    The main purpose of this post is to tell people that mySociety is heading in this direction, and that we’d like you along for the ride. We won’t have a beta to play with for a good few months yet, but we are keen to hear from anyone who thinks they might be an early adopter, or who knows of other people who might want to be involved.

    And we’re just as keen to hear from people inside councils as outside, although we know your hands are more tied. Wherever you sit – drop us a line and tell us what sort of use you might want to make of the new technology, and what sort of features you’d like to see. We’ll get back in touch when we’ve something to share.

  6. Love Parks Week starts tomorrow – and FixMyStreet can also be used to fix your park

    Park by Barbara Mazz
    Love Parks Week logo

    21st to 29th July is Love Parks Week – a campaign that raises awareness of the importance of green spaces in local communities.

    This year, they are focusing on “healthy” parks – that is to say, parks that are safe, clean, well-maintained, a home for wildlife, and a hub for the local community.

    The Love Parks website features a quick online health check which you can complete for your local facilities.

    If your local park isn’t up to scratch, this is a great week to report it via FixMyStreet. You might think that you can only report problems on streets and roads, but in fact the automatic geolocation function, and the zoomable, draggable maps mean that you can also pinpoint issues very precisely, even if they’re on open ground.

    So, if your playground equipment is rusty, the pond is full of algae, or the dog bin’s overflowing, you know where to turn.

     

    Image by Barbara Mazz, used with thanks under the Creative commons licence.

  7. WeWorkTogether

    Describe your idea:

    Introduce volunteer citizen participation directly into the daily operation of elected politicians, on both national and local levels. Start with local councilors and: A) TASK TRACKER = simplified version of Request Tracker, or Basecamp, to track tasks that citizens ask councilors to work on and tasks that councilors work on otherwise; B) OPEN COMMITTEES – tool to have citizen discussing tasks/decisions and related documents that councilors work on in committees, with citizen ability to collectively comment on and edit documents. Couple of my local concilors are willing to start using it and i’ll work with them anyway. more here.

    What problem does it solve?:

    Problem of political representation, which is a broken way to conduct politics democratically. Since it doesn’t enable citizens to participate in it directly. This proposal would open the doors for the Internet Model, by introducing the concept of Open Process. With the tools for communication and cooperation we have available, our current political models are a problem in itself. They have been designed centuries ago and are quite inappropriate today. We can do far better. Example proposal of Open Process in academic publishing.

    Type of idea: A brand new project

  8. eWell-Being Award

    Last week at the SustainIT eWell-Being Awards, we picked up an award for FixMyStreet. The judges said it was “[a]n excellent example of an independent website which empowers the general public in their dealings with their local council. It is a relatively simple application, yet highly effective and replicable.” One example the accompanying Independent supplement mentioned was “a community in Great Yarmouth which joined forces through FixMyStreet to clear their local unused railway track. The site made possible a dialogue between community members and the council’s community development worker, who organised a “clear up” day where locals could get involved with rectifying the situation, with tools, insurance and even a barbeque provided.” It’s great to see that sort of thing happening on the site, and also great to be recognised in this way.

    In a spirit of celebration (though more to celebrate the endorsements the campaign has received), TheyWorkForYou now covers the Scottish Parliament – see the TheyWorkForYou news for more information.

  9. The Mashup to End All Mashups

    Well, I doubt that this will end the mashup trend going on out in the interwebs, but I thought folks might be interested in seeing this…

    NetSquared (based in the U.S.) has launched their newest summer contest, the N2Y3 (that’s NetSquared Year Three) Mashup Challenge. You can see the 100+ projects that have been submitted here. One of mySociety’s projects, PledgeBank, is featured in one of the submissions: Social Actions. OK, the name isn’t super-sexy. But the idea is. Peter Deitz is developing a way to lead any given user (an individual or an organization) through the process of selecting a social action platform. Do you want to raise money? Do you need to integrate with a specific CRM? Do you need an online donation processing tool? Do you need a widget for your site? This mashup with combine 29+ (the list keeps growing) “action” tools (including PledgeBank) in that wizard, helping the average Joe or Jane figure out which tool would work best for them.

    Of course, in order to move forward in the competition for mentoring and money, Peter needs your vote. To vote for this mashup (and at least four more — NetSquared is smarter than to just let everyone vote for one), just create a free account on the site and add at least five projects to your ballot. There are some really cool ones out there, so browse around a bit. The polls opened on Monday at 8am PST, and they will be closing on Friday at 5pm PST. The 20 mashup proposals with the most votes will attend the annual NetSquared Conference in San Jose, May 27 & 28, 2008. During the conference, the mashup creators will have a chance to pitch their projects to funders, foundations, and fellow nonprofit tech professionals.

    As they say in Chicago, vote early and vote often!

  10. Richard Pope’s GroupsNearYou.com launches

    Say hello to GroupsNearYou.com.

    The Short Geeky Explanation

    GroupsNearYou.com is an entirely user generated API-queryabledatabase of the location and nature of local online communities, irrespective of the platform they are hosted on. A piece of the programmable web, in short, with local community building focus. The syndicated community information can easily be layered onto a map, for example.

    The Business Problem it Solves

    Do you run a site that tells people stuff about their local area? Do you suspect that there might be quite a lot of internet enabled community activity going on in local areas that you’d like to tell your users about? Use our feeds.

    The Social Problem It Solves:

    There’s a proven real world social value to people belonging to very local email lists and other forms of local online community. However there is no eBay or Craiglist or other market dominant player in the local online community world, instead there’s a myriad of google groups, yahoo groups, Facebook & other YASN groups, extremely old school CCed email lists, online forums and so on. As a consequence of not having one big simple place to go to find and join local groups (many of which are not even on the web for Google to find) far fewer people ever find out about and join their local online groups. GroupsNearYou.com is about getting more people to join groups, groups that are not hosted by us, and (hopefully) mainly discovering them via uses of our syndicated info on sites that aren’t run by us. It’s a piece of pure internet infrastructure, with a positive social bent.

    Who did it?

    Astonishingly, the project was almost entirely built by a volunteer, Richard Pope assisted in design by another brilliant volunteer Denise Wilton. Their only reward is a highly sought after mySociety Hoodie, plus the love and gratitude of all our users.

    Richard has been an amazingly dedicated volunteer for mySociety and on his own projects for over two years, and deserves the reputation he is rapidly gaining as one of the world’s truly great civic minded web innovators. The project was funded by the UK’s Government’s Ministry of Justice who have been trying to run experiments of different kinds in the realm of electronic democracy. Their money will go to help improve and grow the site, rather than building it, which is a very interesting funding model in its own right. The several hundred groups already in the system are mainly added by users of WriteToThem.com

    Next steps

    Almost all the groups listed in the database are in the UK at the moment, and they’re all from users of our other sites. We’re interested in working with anyone who runs sites that might want to either take information out of it, or put information into it (Hello email list/social network providers!)

    Anyway, it’s dead simple really, just a little brick in the internet wall, albeit one that I hope will help a few more people meet their neighbours and improve their communities.