In the past month over 4,600 Freedom of Information requests made via our site WhatDoTheyKnow resulted in information being released. Volunteer Molly Williams has picked out a few highlights.
The autopsy of Alexander Litvinenko
The autopsy of the former Russian spy who was killed in November 2006 by radioactive polonium-210, which is believed to have been slipped into his cup of tea on Putin’s orders, has been described by a pathologist as “the most dangerous post-mortem examination ever undertaken in the western world”.
An FOI request sent via WhatDoTheyKnow.com to Barts Health NHS Trust, whose care Litvinenko came under when he fell ill with the poisoning, revealed the detailed step-by-step procedure used to carry out his post-mortem safely. The examination determined how he was murdered.
Thousands of NHS and health bodies are listed on WhatDoTheyKnow, so if you have queries on the data they hold, it’s a great place to start.
Grenfell displaced person plans
An FOI request sent after the fire that killed 80 people and burned down a large block of flats in the Kensington and Chelsea area revealed the progress of plans to rehome those left homeless.
Some key details revealed were that:
- all regeneration plans have been put on hold in Kensington and Chelsea
- emergency hotel accommodation in Kensington and Chelsea was offered to all made homeless by the fire
- there were 179 offers of temporary accommodation made, of which 65 were accepted
- everyone affected has a dedicated Housing Officer to help them find a new home
- the council aim to rehome everyone who was made homeless by the fire by June 2018
Crime statistics at Leeds Festival
An FOI request sent via WhatDoTheyKnow revealed all the crimes reported from Leeds Festival over the past five years — including sexual offences, drugs, and fraud. It also showed that 2016, the latest year for which statistics were available, was the worst year for crime at the festival, with 200 offences reported. See the request and the full stats here.
Letter from Chris Grayling ordering GTR to fund a £13.4 million improvement to Southern Rail
How do you phrase a difficult letter? After it was quoted in national media, a message from Transport Secretary Chris Grayling, fining Govia Thameslink Railway for £13.4 million, is now available in full for everyone to read.
In the letter Grayling stated that “passengers who depend on Southern have been badly let down” and went on to outline what the money will be spent on, including more on-board staff and £7m on “improvements that will directly benefit passengers”.
There are five railways companies listed on WhatDoTheyKnow. Not all of them are subject to FOI, but we list them anyway because we believe them to be subject to the less-known Environmental Information Regulations (EIR). And of course, as in the case mentioned above, you can always request information from public bodies which correspond with, or contract, organisations not covered by FOI.
Supernatural crime reports in the West Midlands
A requester asked for any reports on “ghosts, werewolves, witches, aliens, zombies and the like” to the West Midlands Police. Think this is a frivolous question? Well, in the past 12 months no fewer than 10 supernatural sightings have been filed. Following the response, the requester asked for further information on these mysterious sightings and is currently awaiting more detail.
Football in Worcester
A request revealed, within a series of released email correspondence, plans to build a community sports stadium and relocate 3D artificial turf playing fields. It also showed the decision process taken, including consideration of the possible effects on the local area. Read what’s happening to football in Worcester here.
If you want to know more about Sport England’s plans in your local community, you can send an information request to them via WhatDoTheyKnow.
Seabird and raptor monitoring on the Isle of Rum
An FOI request sent to Scottish Natural Heritage revealed details of their monitoring of seabirds and raptors including which species they track, their monitoring methods, and research aims.
Read the details of the methods, findings and staff involved in the monitoring of these incredible birds on our site, here.
Platelet donors and donations
Information released by NHS Blood and Donations under FOI revealed how the number of platelet donors and donations has been gradually decreasing since 2010. When responding, the public body helpfully explained the trend in the statistics:
“NHS Blood and Transplant has gradually reduced the amount of platelets it collects from platelet apheresis donations and increased the amount of platelets it collects by pooling whole blood donations from whole blood donors. This follows the 2013 recommendation made by the Department of Health’s Independent Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO) to remove the requirement to provide 80% of platelets to hospitals by apheresis”.
FOI numbers and staff
You can even send an FOI request about the handling of FOIs! One requester asked for how many requests to Knowsley Metropolitan Borough Council were received in the past three years and the number of staff who deal with them.
There were a total of 3,160 requests but no designated team dealing with them, which may simply suggest there is an FOI culture embedded throughout the organisation, where the role is combined with other jobs. Read the full response here, and if you, too have a question about FOI requests you might like to send an FOI request via WhatDoTheyKnow.com.
If you’re in a wheelchair, it can be tricky enough getting around. So it’s particularly disappointing to learn that some taxi firms charge wheelchair passengers extra, and that some drivers refuse to take passengers in wheelchairs at all.
If you’re thinking ‘surely that’s illegal’ — well, it is. Only from quite recently, though: it was last April that a law came in which imposed a £1,000 fine for drivers who refused or charged extra for those in wheelchairs.
But there’s a complication. This fine can only be imposed by councils who keep a designated list of all wheelchair-accessible public hire vehicles: no list, no fines.
Does it matter? Well, that depends on how many councils are intending to compile the list. And as WhatDoTheyKnow volunteer Doug Paulley knows very well, there’s one good way to find out information from every local authority: via a Freedom of Information request.
Doug used WhatDoTheyKnow to submit FoI requests to all 366 taxi licensing councils, and Transport for London, who administer taxi licensing on behalf of all the London boroughs. The results of his research can be seen in full here, or you can quickly check your own local council on this map.
As indicated, if your council is one of the 59% who, by not keeping a list, are unable to implement the anti-discrimination law, you might like to contact your councillors to let them know how you feel about that.
In February 2016, Tom Gallard made a simple request to the Welsh Government through our Freedom of Information site WhatDoTheyKnow.com. He wanted to know the exact sum paid to Aston Martin in a much-publicised deal which would bring its luxury car-making facilities to St Athan.
15 months later, in June 2017, he received the answer.
Now clearly, this is not an example of an efficient and prompt release of information on request — so let’s look at exactly what happened.
Tom’s request was not complex, but it appeared to ask for something that the Welsh Government were reluctant to disclose, and as a result, it encountered several obstacles.
February 24, 2016: request made
Tom made his one-line request: “Please provide details of the financial support agreed with Aston Martin to create 750 jobs at St Athan.”
Was there anything in particular that spurred you to make this request?
“I read a lot of the news reports around the deal to bring Aston Martin to Wales, and I got more and more frustrated as it became clear that no-one was disclosing how much this would cost. I didn’t feel I could judge whether it was a good use of money or not, without knowing how much was being spent”.
March 23, 2016: reminder sent
Under the FOI Act, authorities are supposed to respond to request for information promptly, and at most within 20 working days. WhatDoTheyKnow sends its users a reminder when this date has passed, so you can chase your request if needs be.
According to this official timeline, Tom’s response was due by March 24 at the latest, but in their acknowledgement, the Welsh Government had said that they would reply by March 14, so his reminder wasn’t necessarily premature.
March 24, 2016: refusal received
The Welsh Government did reply within the time-limit, albeit on the last possible day.
Their response confirmed that they did have the information Tom had requested, but stated that it was exempt from disclosure under Section 43 of the Freedom of Information Act, which relates to commercial interests. Use of this clause requires the authority to show that the public interest in withholding the information is greater than the public interest in releasing it.
Same day: review requested
When you receive a refusal in response to your FOI request, you might think that there’s nothing more you can do — but, as WhatDoTheyKnow’s automated advice explains to users in this situation, you have the right to request an internal review.
Tom did just that, quoting ICO guidance on commercial interests, noting that the Welsh Government had previously published information on grant funding given to other companies, and particularly, pointing out an apparent misreading of the meaning of ‘public interest’ on behalf of the Welsh Government: “The public interest here means the public good, not what is of interest to the public”.
“What frustrated me was a refusal in the Welsh Government’s response to engage with the specific case. I had seen them produce a lot of very similarly worded replies to a range of FOI requests. I spent a lot of time reading previous judgements by the Information Commissioner, and felt I had a strong case.”
Why do you think the Welsh Government might have been so reluctant to release this figure? As you mention, figures for similar deals had been released in the past.
“A lot of people have found this reluctance odd. It has also been suggested to me, by a couple of well-placed sources, that the figure they have now released is just one part of the support the Welsh Government has agreed to provide to Aston Martin.”
April 26, 2016: review reminder, response, referral to the ICO
Tom knew his rights and as he mentioned in this follow-up — two days after he should have received a response — “ICO guidance suggests that if the 20 day limit is to be breached, I should have received an email telling me this, and the reasons for the delay”.
Whether because of this reminder or not, he received his response that same day. The Welsh Government’s own internal review concluded that they had been within their rights to withhold the information under Section 43 of the FOI Act.
Again, this is a point at which many requesters might give up, and again it’s one where WhatDoTheyKnow can inform you of your options. If you believe that an authority is withholding information which it should have released, and you have been through the internal review process, you can refer the case to the ICO.
As this part of the process happened outside WhatDoTheyKnow, Tom helpfully left an annotation on his request page.
December 6, 2016: amendments from the Welsh Government
While the case was with the ICO, the Welsh Government sent a further response to indicate that they were changing their reason for exemption: they were now relying on two different sections of the FOI Act: 29(1)(b), the economy, and 36(2)(c), the effective conduct of public affairs, details of which you can see in this response.
Tom left an annotation to say he’d alerted the ICO to the change in defence, along with some counter-arguments.
May 31, 2017 ICO ruling
ICO decisions do not generally come quickly, but it can certainly be worth lodging your complaint with them.
June 2, 2017, information received
Two days later, the sum was finally disclosed, and can be seen here.
– Now that you have the information you requested, will you be using it any way, or are you simply content that it’s now in the public domain?
“I’m happy it’s out there now. But I’m definitely considering whether I can squeeze out some more details about how else the Welsh Government is supporting Aston Martin.”
And of course, that path is also open to anyone else who’s interested in this deal. There’s lots more that could be requested through FOI, from what the exact wording of the contract is, to how the outcomes will be monitored, or how the money is to be paid (the ICO decision notes that no payments had been made as of April 2017; if they are made in the future, they might be pro-actively published on the Welsh Government site — or, if not, someone might need to make another FOI request in order to obtain them).
If you do make a related request, please do mention it in an annotation on Tom’s request so that others can easily find it.
This was a long story
As you might expect, at mySociety we are strongly in favour of the citizen’s right to information under the FOI Act.
Naturally, we prefer it when information is released without a hitch. But those aren’t always the best stories: we hope that by highlighting examples like this, where WhatDoTheyKnow users have shown tenacity and determination, we can show that if you have a valid request, it’s worth sticking to your guns.
WhatDoTheyKnow makes it straightforward for anyone to request information from public authorities. Your donations help us.Donate now
Image: Adam Court (CC by/2.0)
Just like many others, we at mySociety have been appalled and shocked at the Grenfell Tower fire which struck last week. That shock has only deepened over the weekend as the confirmed death toll has risen and more facts have emerged.
As both the public and the media search for the ‘why’ behind the story, strands are emerging which point to political mismanagement, inequality, long-term neglect and deprivation, shortsighted cost-cutting, rule bending, and following the letter, rather than the spirit, of the law.
Residents of the tower had raised multiple concerns about the risk of fire, only to have their requests dismissed. As our CEO Mark Cridge says, ‘Simply put, this is a totemic example of what happens when citizens fail to have influence over those with power.’
Everything mySociety does is about giving citizens more influence over those with power, so that puts Grenfell very much within our purview.
We recognise that there are deep, intractable issues around this terrible incident. We’ll be thinking more deeply about what we can do in the long term, and we’ll be returning with further thoughts once we’ve had a chance to discuss the best way forward.
But for the moment, we have services which you might wish to make use of right away.
If you want to help campaign
The first instinct of many, after an event like this, is to campaign for change or justice.
At this stage, facts are still emerging. If there’s information that you think might help, but which hasn’t yet been covered, you can use Freedom of Information to lodge a request with a relevant public body, on our site WhatDoTheyKnow.
Note that this is not necessarily a speedy process (while authorities must provide the information if they hold it, in most cases*, the process can take up to 20 working days); if you have personal concerns, see below for our advice on getting quick answers — but if there is information which you think should be in the public domain and which does not yet appear to have been requested, you may wish to lodge your own FOI request. It’s very easy, and WhatDoTheyKnow also publishes the whole correspondence online, meaning the information is then available to all.
In fact, over the last few days, many have already used this avenue to request information:
- Request to see the tender for the provision of cladding
- How missing and unaccounted-for people have been counted
- Details of insurance on the tower
- Numbers and demographics of tenants
- Income and repairs expenditure
- Details of the 2013 emergency fire test
- Date of the last fire test
- Further details on the cladding, fire alarm and sprinklers
If any of these requests are of particular interest, you can use the ‘follow’ button to receive an email when they are updated, e.g. when a response comes in.
Or if you would like to make your own request (remembering that you shouldn’t replicate anything that’s already been requested — just follow those requests if you want the answers) here are some relevant authorities:
- Royal Borough of Kensington and Chelsea The council in which Grenfell Tower is situated
- London Fire Brigade The service which ran rescue and firefighting operations
- Kensington and Chelsea TMO The Tenant Management Organisation, or Arms-Length Management Organisation (ALMO) which managed the tower
- Metropolitan Police
- All ALMOs (for those who wish to ask for information about other blocks)
- All Housing Associations Note that, unless publicly owned, housing associations are not subject to FOI; however they are included on the site for the reasons you will see at the top of each housing association’s page on WhatDoTheyKnow, like this one.
Also: while only publicly-funded organisations are covered by the FOI Act, note that you can ask any council for, say, contracts, minutes of meetings or sums paid to contractors or housing associations, which may cover much of what you need.
Lobby for change
Another way to campaign is to contact your MP and make it clear what action you would like them to take, whether that is a question asked in Parliament or to push for new legislation. You can see who your MP is and send them an email on our site WriteToThem.
If you want quick answers
Your local representatives are there to offer help and answer questions.
If you live in a towerblock yourself, and especially one that has been recently retrofitted with cladding, you may, understandably, be worried. In fact, some of the requests on WhatDoTheyKnow reflect just that concern:
- Cladding on other tower blocks – reassurance needed
- Is Katherine’s Court in Spring Boroughs similar cladding to Grenfell Tower
- High Rise blocks in Wood Vale
But like we’ve already said, FOI requests can take time. If your block is council-owned, you’ll get the quickest information — and hopefully, assurances — via your council, and you can get support from your local councillors. Even if your block is privately-run, you may find that they can help, with information about local legislation or suggestions for the best contacts to follow up.
WriteToThem also covers councillors. You don’t need to know who they are — just input your postcode and the site will guide you through the process of sending them an email.
What we will be doing
We’re still discussing the best way that mySociety can help, and we’ll be following up with a more considered response once we’ve come to some decisions.
Some ideas have already been suggested, from a FixMyTowerblock version of FixMyStreet, allowing residents to lodge concerns which would then be in the public domain (as well as being sent to the block’s management), to a site co-ordinating the needs of victims.
Whatever we do, we want to make sure it’s genuinely useful — whether that means using our own resources, or supporting others who use our Open Source code to power their own projects. So watch this space and we’ll let you know how our discussions go.
*Unless covered by an exemption.
OpenStreetMap is a project that creates and maintains maps all over the world, putting them out as open data that anyone can use.
While many additions are made by on-the-ground volunteer contributors, the input of other data sources allows OpenStreetMap to make leaps and bounds in its coverage, as you might imagine. But using such data is only possible if it can be reused within the terms of OSM’s share-alike open data licence, the ODbL.
And that’s where we pick up the story of Robert Whittaker, who used WhatDoTheyKnow in the hope of augmenting the OpenStreetMap offerings for Cambridgeshire, UK.
Rights of way
Robert saw a chance to add better data on public footpaths, bridleways, and byways in the county to OpenStreetMap. He explains the background:
“Councils have a legal duty to maintain an official list and physical map of rights of way, but most councils — including Cambridgeshire — also maintain an unofficial digital map as well. It was the underlying data behind the digital map that I was after.”
Not just for OpenStreetMap, though — the project’s reuse policy means that once they’ve put the data in place, it’s available for others, too.
“Having this data — and the right to re-use it — will allow people to create their own maps of the Rights of Way and mix the data with information from other sources. This would then allow, for example, routing software to plan walks using Public Rights of Way and other roads.
“Cambridgeshire was one of the few councils, until recently, that was not making the data freely available.”
The right to ask
So, how do you go about obtaining something like this? If you’re familiar with Freedom of Information or its close neighbour EIR (Environmental Information Regulations), they provide an obvious route, as these pieces of legislation provide us all with the right to request data from public authorities. Robert was very familiar:
“I’ve made quite a few FOI and EIR requests over the years, mostly through the excellent WhatDoTheyKnow.com. A lot have been for data that will be useful to OpenStreetMap mappers, but I’ve also made requests to gain information about the workings of public authorities, either to inform campaigns, increase transparency, or expose poor decision-making.
“I think the first FOI request I sent personally was in 2006 to my university to ask for the specification and testing details for an out-sourced student-facing web-app that had a particularly poor user interface. It was to inform a campaign by the Student Union to get improvements made.”
With this experience in his background, EIR and FOI were the natural routes for Robert in obtaining this data. He made three requests: first, asking for the GIS data, then, to request permission for its reuse; and finally for the related written descriptions.
The right to refuse
Unfortunately, the requests did not go as smoothly as he might have hoped. That first request was back in August 2014, and if you read through the stream of responses and annotations, you’ll see that Robert experienced almost the full set of obstacles that can get in the way of an FOI response — from the council simply not responding in time, to their responding with only parts of the data he had asked for, and citing rules which didn’t apply to the situation in hand.
It’s a good thing that Robert is both well-informed and tenacious, as surely these hurdles would have proved discouraging, if not completely off-putting, to many requesters.
Much of his argument pivoted around a specific exemption — a clause which allows an authority not to provide data under certain circumstances, in this case, the enticingly named EIR 6(1)(b).
“EIR 6(1)(b) allows public bodies to refuse to provide information in a specific form or format, if it’s already publicly available and easily accessible in another form.
“The council argued that because they had an online map available on their website, the information about the rights of way was already available and so 6(1)(b) meant they could refuse to release the underlying data.
“I successfully argued that the map was only a summary or approximation of the underlying data I’d requested. That data contained the actual coordinates of the points and the lines joining them to make up the routes. I think one of the key arguments was that given the data you could generate the map, but given the map you could not recreate the full underlying dataset, you could only obtain an approximation to it.”
The (almost) right outcome
Robert was ultimately successful in his first two requests, two and a half years after making that initial request. The third is still being contested.
“It’s been frustrating, but eventually worthwhile. I’m annoyed at how long it has taken to get to the end, and also annoyed at the public money that the Council has wasted in prevaricating and trying to withhold the information.
“I think the ICO probably needs more resources to be be able to investigate cases more promptly. I also think it should take a stricter line with public authorities that frustrate requesters or the ICO’s investigations. The ICO already has some additional powers that would help here, but they seem reluctant to use them, even though doing so could speed things up significantly.”
But even while we await the outcome of the final request, Robert’s patience has already begun to pay off:
“I’ve already loaded the data into my comparison tool to help mappers improve OSM. Also, thanks to Barry Cornelius, the Cambridgeshire data is now available from his site in a number of different standard formats, for anyone else who wants to use or view it.”
We run WhatDoTheyKnow so it’s easy for anyone to make an FOI or EIR request — and your contributions help us carry on doing so.Donate now
About six million people a year visit mySociety’s Freedom of Information website WhatDoTheyKnow.com; there are well over 100,000 registered users, and over 385,000 requests have been made via the service.
Of course, it’s fantastic that WhatDoTheyKnow is so well used, but the growth and popularity of the site brings its own challenges, not least the day-to-day admin that keeps the site running.
Many aspects of the site’s operation are run by volunteers, supported by mySociety’s staff and trustees — and due to the site’s success we’re looking to expand the volunteer team.
What does volunteering involve?
The work is pretty varied, but there are some frequent and recurring tasks:
Dealing appropriately with requests to remove material from the website
This is one interesting challenge which arises fairly often. Sometimes these requests are from public bodies who’ve released information they didn’t mean to; and they can also come from individuals and companies who are named in correspondence on the site.
These decisions are not always as black and white as you might expect. Some recent examples where we had to carefully consider the balance on both sides were:
- Material which Transport for London were concerned could be used to steal a tube train. We considered: was this a genuine risk? Was our publication really increasing the risk? Was the information already available elsewhere? What was the potential value of publishing the information to tube staff and their representatives, travellers and the wider public?
- Sainsbury’s were concerned that published material didn’t reflect their corporate policy on “workfare”. That may have been the case, but we asked ourselves whether that made it inappropriate to continue to publish the information that had been released. Additionally, where did the public interest lie? What legal risks were there arising from continued publication?
Responding promptly and accordingly to accidental releases
Thankfully, the frequency with which public bodies accidentally release personal information in bulk via Freedom of Information responses is decreasing, but the WhatDoTheyKnow team still have to act promptly when this does occur.
We often help users on both sides of the FOI process. For requesters, we can answer questions about FOI and how to use it, and we also work with the staff of public bodies who are at the receiving end of requests.
And all the rest
There’s always more that can be done to promote the service, draw attention to interesting correspondence on the site, and lobby for improvements to our access to information laws.
The wider team at mySociety help people around the world to establish and run their own online Freedom of Information services; and new features are being added to the UK site to make it more attractive to professional users such as journalists and campaign groups. Volunteers have the opportunity to get involved in these activities, helping steer the direction of new projects, based on their frontline experience of being a site administrator.
Keeping the database of thousands of public bodies up to date is another challenge, especially given the frequency of reorganisations in the UK’s public sector.
We work primarily by email, with regular video conferencing meetings, and occasionally meet up in person.
As a volunteer, you can decide how much time you put in, and what aspects of running the service you decide to take part in — but ideally we’re looking for people who can spare at least an hour or two, a couple of days a week.
We understand that people’s external commitments vary over time, and of course, there’s a flexible approach if a team member needs to step away for a stretch now and then.
What makes a good WhatDoTheyKnow volunteer?
There’s one characteristic that all the WhatDoTheyKnow volunteers have in common: a belief in the value of Freedom of Information, or, more widely, the expectation of transparency and accountability from the bodies which citizens fund.
As for practical skills: perhaps you’ve been involved in moderating discussions on the web, or have experience with access to information, defamation, or data protection law. Or perhaps you have, or would like to gain, experience dealing with “customers” by email.
Primarily we’re looking for people capable of making good judgements, and who can communicate clearly online.
Before joining the team, new volunteers will have to agree to follow our policies covering subjects such as security and data protection. That said, part of the role may be, if desired, taking a part in developing and refining these, and other, policies as the service grows and changes.
How to apply
If helping us run WhatDoTheyKnow sounds like the kind of thing you’d be interested in doing, then please do apply to join us.
We only have the capacity to bring on and train a few volunteers at a time, and it is important that those chosen to help administer the service are trustworthy and committed to its policies, direction and non-partisan stance. For these reasons, we are recruiting volunteers via a formal application process.
To apply please write to us before the 20th of March 2017, introducing yourself, and letting us know about any relevant interests or experience you have.
What do we offer in return?
As a volunteer, the main reward comes from the satisfaction of assisting users, making good decisions, and helping run what is fast becoming a key part of the country’s journalistic and democratic infrastructure.
Volunteers may be invited to mySociety events and meet-ups, providing a chance to take part in discussions about the future direction of the service and the organisation’s activities more generally. There have been a number of conferences held, where those running Freedom of Information sites around the world have got together to share experiences: one or more volunteers may be invited to join in, with travel expenses paid.
Other ways to help out
If volunteering to join the WhatDoTheyKnow team isn’t for you, perhaps there’s something on mySociety’s Get Involved page that is — or you could:
Image: MarkBuckawicki [CC0], via Wikimedia Commons
The Police Federation of England and Wales is the latest body to be added to WhatDoTheyKnow.
Thanks to the Policing and Crime Act 2017, which came into force on January 31, the Federation is now subject to Freedom of Information. That means that if you make a request for information which they hold, under most circumstances they must provide it.
These new responsibilities were announced by Theresa May back in 2014 when she was Home Secretary:
I will bring forward proposals to make the Police Federation – that is, the national organisation and all the regional branches – subject to the Freedom of Information Act.
I know that some of you will find these changes unpalatable. In particular, I know that some of you will find the Freedom of Information Act an unwelcome intrusion. But the Police Federation is an organisation created by statute, it serves a public function and the Normington Review demonstrated very clearly that it is an organisation in need of greater transparency and accountability. So it is a change that I believe needs to be made.
Whether it was found unpalatable or not — it happened. Accordingly, that’s now reflected on WhatDoTheyKnow, so if you have a burning question for the Federation, now is the time to ask.
What’s the best way to get your supporters to campaign, when the finer details of what they’re pressing for may vary from place to place? That’s the issue that faced Prostate Cancer UK as they call for better provision for men across the country with erectile dysfunction as a result of prostate cancer.
There are five core treatments for tackling erectile dysfunction, but whether all of them will be offered to you depends on your postcode. In some areas, all are offered as standard, while in others there may be none.
The tool we built for Prostate Cancer UK used several of mySociety’s areas of expertise, from mapping to user testing — we even used Freedom of Information. And putting it all together, we have a powerful campaigning platform that responds to users’ location, while raising awareness and pushing for improvement.
Prostate Cancer UK’s Erectile Dysfunction campaign site informs people about what care should be available to those who experience the condition as a result of prostate cancer treatment, and urges them to write to their local health commissioner if provision is poor in their area.
Educating, campaigning, sharing
The user is first informed: they are shown the five factors which constitute good treatment of erectile dysfunction. After that, they are prompted to input their postcode to see how many of those measures are provided by the NHS body responsible for their region.
If provision is poor, they are encouraged to help campaign: users can opt to write to their Clinical Commissioning Group (CCG), Health Board or Health and Social Care Board to ask them to improve what’s available. They are given the choice between writing a letter from scratch, or using a pre-composed template which also contains a section for the writer to add a paragraph of their own words — a pragmatic balance that avoids an influx of identical form letters, while still addressing fact that when users are faced with a completely blank page, many will drop out of the process.
When you’ve done that, for those in England there’s also an opportunity to contact Jeremy Hunt, Secretary of State for Health to highlight the variation in treatment for erectile dysfunction and establish which organisation is responsible for the national commissioning guidelines.
Finally, the user is invited to share what they’ve learned, via Facebook, Twitter or email. Our user testing revealed that, contrary to our worries, people were happy to do this without embarrassment.
How it works
Like most of mySociety’s own sites, the ‘Better Care’ site uses MapIt to match the user’s postcode with a boundary, in this case the boundaries of the CCGs, Health Boards and Health & Social Care Boards. That’s how we deliver the information about what’s available in their local area.
When you input your postcode to see how your local provisioners are doing, MapIt also delivers information for other areas, including a couple of close neighbouring ones. This allows us to provide a nice comparison, along with the statistic that shows whether your provisioner is better, worse, or within the same range as the average.
But how did we gather the data to tell you how well each CCG, Health Board or Health and Social Care Board is catering for erectile dysfunction patients? Well, fortunately, thanks to our own WhatDoTheyKnow website, it was relatively easy to send a Freedom of Information request to every one in the country — 235 of them in total. The WhatDoTheyKnow volunteer admin team were able to help with this large batch request.
Once we had all the data and a general idea of how the tool would work, we took an early version out to test it with users. The insights we gained from this process were, as always, extremely useful, and led to us altering page layouts and other elements that made the whole process as clear as it could be.
Finally, we incorporated quite a bit of statistics-gathering into the whole tool, so that Prostate Cancer UK would be able to see where their campaign might benefit from further optimising in the future.
All in all, we’re very glad to have been part of this important campaign to help men understand what’s available to them, and where they might need to push for more.
Lucie Stephens has sent Freedom of Information requests to every Local Education Authority in the country — over 200 of them.
She’s requesting information about asbestos in schools, and for a reason that’s very close to her heart. Earlier this year, Lucie’s mother, a teacher, died of mesothelioma, a cancer that is almost exclusively caused by exposure to that substance.
Now Lucie is acting on the promise she made before her mum passed away: “To do my best to make sure no-one else has to suffer like she has.”
We were really interested to hear how Lucie came to use Freedom of Information as tool in her campaign, so we got in touch to ask her a few questions.
After Mum’s diagnosis I wanted to know how safe my daughter’s school was. I wrote to them and got a positive response: her school does contain asbestos and they were willing to share this information with me.
I then wrote to my local council to request the same information for my borough. This took a lot longer, and involved frequently having to chase and remind them of deadlines missed.
I thought all parents and teachers should know if their school contains asbestos. I didn’t want them to have to struggle to access the information from their local council in the way that I did.
A friend suggested that FOI would be a good way of getting hold of consistent information, and at this point it also became clear that it would be a useful way to analyse how well asbestos is being managed in our schools.
Had you heard of the Freedom of Information Act, or used it previously?
I had heard about FOI before but hadn’t used it. It had always seemed a complicated and challenging process, so I was nervous of it. I knew what questions to ask but was still worried about getting the format right.
I had made contact with the National Union of Teachers (NUT), as they are also campaigning to get asbestos removed from schools. I asked them to advise on the best wording to use in order to get the information that I required, and they were really helpful.
Once you have all the data for every school in the country, what will you do with it?
Every parent and teacher should know if their school contains asbestos.
I am planning to use the data collected to produce an easy-to-access national map that parents and teachers can use to find out if their school is affected. By telling parents which schools have asbestos we are enabling them to hold their school, local education authority and ultimately (we hope) the Department for Education to account. The map will also be useful for campaigners and journalists concerned with the issue of asbestos in schools.
What would be the ideal outcome of your campaign?
I want policy on asbestos in schools to change.
Each school should be expected to produce an annual report on the extent of asbestos and how it is being managed. This will increase transparency and accountability until we get to the point where all asbestos in schools has been removed.
At the same time the Department for Education needs to change its approach. It needs to commit to the phased removal from all schools by 2028.
To achieve this they need to earmark funds specifically for asbestos removal and set annual targets for the number of schools that will be asbestos free. The phased removal should start with the most dangerous schools first but seek to remove all asbestos by 2028.
By revealing which schools contain asbestos, the campaign will make it easier for parents to hold the DFE to account over their plans for the removal of asbestos.
Have any of your FOI requests been turned down?
I made my requests to local authorities, asking them to provide the figures for every school in their jurisdiction. Most have not provided information for academies and free schools as they do not have a statutory responsibility for them.
There were various refusals and partial responses, from authorities which just issued generic statements that ‘all local schools built before 2000 contain asbestos’ with a link to their online schools directory, to those claiming that the information sought would take too long to collect, and so refusing to issue it, or requesting payment before the information could be released.*
Some areas withheld data on the number of claims that they had received from teachers, school staff and ex-pupils, stating that the figures were low enough to make it possible to identify the individuals concerned. Some areas refused to release details of the amount of money paid out in claims, stating that this would breach data protection. This rule was not applied consistently, though, as some areas did release figures relating to only one claim and settlement.
I was very irritated to find some authorities who, because they claimed to be unable to answer one of my seven questions, then refused to answer any of them. To date we only have data from 135 local councils of 152 approached. Some are very overdue in providing the data.
In gathering the data it was clear that there is huge variety in the ways in which asbestos is being managed in schools. It was also apparent that there is a wide range of ways in which FOI requests are handled.
What benefits did you get from using WhatDoTheyKnow?
Without WhatDoTheyKnow I wouldn’t have been able to collect the data.
The site was really easy to use. It was very helpful in managing the data as it appeared, and in reminding me when authorities were overdue in providing information.
In some cases I used my right to a review to challenge the handling of a request, and this led to further information being released. I definitely wouldn’t have made a challenge without the site making the process straightforward in the way it does.
It has also been great to have the data held on a public site like this, so that I’ve been able to direct journalists and campaigners to the source of the data directly.
The only challenge with the site was that the number of requests was capped. I can totally appreciate why this was, and in fact when I did contact the team and ask for this cap to be removed so that I could complete the requests in a shorter timeframe, they were very helpful. Having ascertained that I was sending bulk requests for a valid reason, they acted quickly to remove the cap.
You can read more about Lucie’s campaign, and lend your support, on her petition page.
* Note: Making an FOI request is almost always free, but authorities can charge under certain circumstances, and they can refuse to respond to a request outright if it will cost more than a certain amount — currently £450 — to do so.
You might have seen it in the Daily Mirror: the full extent of the Department of Work and Pensions’ legal costs, incurred while fighting the obligation to name the companies who participated in the Workfare scheme.
Workfare is a government program which required the unemployed to work for one of the participating organisations, in exchange for no pay other than their existing benefits — working out lower than the minimum wage.
It’s a story in which our site WhatDoTheyKnow is strongly involved. The original request for the list of companies participating in the Workfare scheme was made on the site back in January 2012 by user Frank Zola.
That request was refused, noting that the information was “being withheld under Section 43 of the FOI Act which relates to the commercial interests of both the Department and those delivering services on our behalf”.
As any WhatDoTheyKnow user is given the means to do, Zola referred the request to the Information Commissioner. They ruled in favour of the release.
The government were unforthcoming, however, and the matter was taken to tribunal and through the court of appeal. Zola continued to pursue the case doggedly as the government repeatedly questioned the ruling that the information must be released into the public domain. Their defence was that the companies and charities listed as participating in the Workfare scheme might suffer negative effects to their reputation and commercial viability, given the strong swell of public opinion against the scheme.
In July 2016, four and a half years after the request had first been made, the full list was finally disclosed, and can be seen on WhatDoTheyKnow here.
But the story doesn’t end there. More than one person, including the Mirror’s own reporters, wondered just how much had been spent by defendants on both sides of the legal tussle. In August another user lodged this request with the DWP and discovered that their costs amounted to £92,250.
Meanwhile, a similar request to the ICO reveals that their costs in defending the case used a further £7,931 from the public purse.
We highlight this story partly because it shows the value of persistence. WhatDoTheyKnow is designed to help users to understand their rights. If your request is refused, it makes it clear that you have the right to request an internal review, making that route less intimidating to those who don’t know the ropes. If you go on to the appeals process, we hope that having all previous correspondence online helps with that. Other users can also offer help and support via the annotations system.
In this case though, we think many would have been deterred once the matter had been referred to the higher courts, and we congratulate everyone concerned for sticking to their guns and getting this information out into the public domain.
In a further twist, it’s perhaps worth relating that a few weeks ago, the supermarket Sainsbury’s contacted the WhatDoTheyKnow admin team and asked us to remove their name from the list of organisations who took part in Workfare, since “a small number of our stores did participate in the government’s Work Experience programme but this was not company policy”. We decided not to comply with this request.