We’ve just listed Sustainability and Transformation Partnerships on our UK Freedom of Information service WhatDoTheyKnow.com. These new bodies bring together NHS organisations and local councils with the aim of better co-ordinating health and care services in England (see NHS England’s webpage introducing them).
In most parts of the country Sustainability and Transformation Partnerships are unimaginatively named. In a few places though the bodies have been more adventurous: we have the bold and strident sounding Success Regime Essex, as well as Together We’re Better in Staffordshire, Transforming Health and Social Care in Kent and Medway, Joined Up Care Derbyshire and one called BOB.
Some of these bodies appear to be just coming into being, with almost nothing about them online at all and others are more established with staff, websites, boards and published meeting minutes. When researching these organisations we found a handful offered Freedom of Information contact addresses, and commendably Kent and Medway’s even has a log of responses it has already made to FOI requests.
Most Sustainability and Transformation Partnerships will be subject to Freedom of Information (FOI) law as all their members are public bodies. Some may not be subject to FOI though, for example Surrey Heartlands Sustainability and Transformation Partnership appears to have private company Virgin Care as a member, exempting it from the relevant definition; we list the body on WhatDoTheyKnow anyway as part of our activism seeking to expand the scope of the law.
What information will a Sustainability and Transformation Partnership hold?
A few partnerships publish their key governance documents (constitutions, terms of reference, memoranda of understanding), and minutes and papers from their boards; these can give an insight into the organisation’s activities and reading them may suggest information which could be made public via a Freedom of Information request. If the basics of board minutes, and governance documents aren’t published you can use WhatDoTheyKnow to get them online and easily for everyone to access.
FOI responses from Kent and Medway show large sums of money being paid to “consultants/external advisory firms” to develop a Sustainability and Transformation Plan and hint at bodies elsewhere doing similar. Freedom of Information requests could be made to partnerships elsewhere to ask for information on their budgets and spending.
It is anticipated that Sustainability and Transformation Partnerships may “evolve” into “Accountable Care Organisations” ACOs, responsible for all public healthcare in a region; this would make them immensely important public bodies.
We’ll keep an eye on the organisational changes and try to keep our service up-to-date.
Maintaining the database of public bodies is a key part of running WhatDoTheyKnow; we have to react to reorganisations in the public sector, and bodies forming, merging, changing their names or ceasing to exist.
NHS Sustainability and Transformation Partnerships on WhatDoTheyKnow
- Alliance Local Delivery System (Warrington, St Helens, Halton, and Knowsley)
- Better Care Together – Leicester, Leicestershire & Rutland
- Birmingham and Solihull Sustainability and Transformation Partnership
- Bristol, North Somerset, South Gloucestershire Sustainability and Transformation Partnership
- Buckinghamshire, Oxfordshire and Berkshire West Sustainability and Transformation Partnership
- Cambridgeshire and Peterborough Sustainability and Transformation Programme
- Cheshire and Wirral Local Delivery System
- Cornwall and the Isles of Scilly Shaping Our Future Transformation Board
- Coventry and Warwickshire Sustainability and Transformation Partnership
- DDT, Hambleton, Richmondshire and Whitby Sustainability and Transformation Partnership
- Devon Sustainability and Transformation Partnership
- Dorset Sustainability and Transformation Partnership
- Frimley Health and Care Sustainability and Transformation Partnership
- Greater Manchester Health and Social Care Partnership
- Hampshire and the Isle of Wight Sustainability and Transformation Partnership
- Healthier Lancashire and South Cumbria
- Herefordshire and Worcestershire Sustainability and Transformation Partnership
- Hertfordshire and West Essex Sustainability and Transformation Partnership
- Humber, Coast and Vale Sustainability and Transformation Partnership
- Joined Up Care Derbyshire
- Lincolnshire Sustainability and Transformation Partnership
- Milton Keynes, Bedfordshire and Luton Sustainability and Transformation Partnership
- Norfolk and Waveney Sustainability and Transformation Partnership
- Northamptonshire Sustainability and Transformation Partnership
- North East London Sustainability and Transformation Partnership
- North London Partners in Health and Care.
- North Mersey Local Delivery System
- Northumberland, Tyne and Wear Sustainability and Transformation Partnership
- North West London Joint Health and Care Transformation Group
- Nottinghamshire Sustainability and Transformation Partnership
- One Gloucestershire Sustainability and Transformation Partnership
- Our Healthier South East London
- Shropshire and Telford and Wrekin Sustainability and Transformation Plan Partnership Board
- Somerset Partnership
- South West London Sustainability and Transformation Partnership
- South Yorkshire and Bassetlaw Sustainability and Transformation Partnership
- Success Regime Essex
- Suffolk and North East Essex Sustainability and Transformation Partnership
- Surrey Heartlands Sustainability and Transformation Partnership
- Sussex and East Surrey Sustainability and Transformation Partnership
- The Black Country Sustainability and Transformation Partnership
- Together We’re Better (Staffordshire)
- Transforming Health and Social Care in Kent and Medway
- West, North and East Cumbria Sustainability and Transformation Partnership
- West Yorkshire and Harrogate Sustainability and Transformation Partnership
mySociety was built on its Democracy practice, a pioneer in providing simple- to-use tools that demystify the democratic process, allow citizens to understand how decisions are being made on their behalf and ensure that their voices are heard by elected representatives.
We’ve been on a long journey, from the early days of FaxYourMP which eventually became WriteToThem, to our pivotal TheyWorkForYou service which has both stretched the ambitions of Parliament in the UK and led us to develop similar services in Kenya, South Africa and beyond.
Amidst all of this has been our ongoing push to better standardise and make accessible more Open Data on politicians around the world; initially through our Poplus and Pombola projects, but more recently – and with more success – through our EveryPolitician service which has blossomed into a remarkable dataset of almost 4 million datapoints on over 72,000 politicians in 233 countries and territories.
Despite these successes I don’t think we’ve yet sufficiently cracked the challenge at scale of enabling more organisations to monitor and report upon the work of more politicians in more countries. We need to do something about that.
One of the principles that has always underpinned mySociety is that we carry our work out in the open, freely available for others to use. But, as is common with many Open Source projects, we do most of the development work ourselves internally. While community contributions are very welcome, practicality has dictated that more often than not, these are more commonly directed to raising tickets rather than making changes to the actual code.
Unchecked, this situation could lead to us being too internally focused; on developing everything ourselves rather than recognising where we can achieve our objectives by supporting other projects.
Fortunately our collaboration with Wikidata, announced earlier this year, suggests what promises to be a clear way forward to scaling up the impact of our work: we recognised that EveryPolitician could only become sustainable at scale as part of a wider community effort if we want our data to be used more widely.
By contributing to what we’ll call the Democratic Commons — a concept of shared code, data and resources where anyone can contribute, and anyone can benefit — we can help build and strengthen core infrastructure, tools and data that allow other democracy organisations and campaigners to hold their own governments to account.
This was notably put into practice for the snap General Election in the UK in June, where rather than build something new ourselves we directly supported the work of Democracy Club in their efforts to source candidate data and ensured that our existing services like MapIt, TheyWorkForYou and WhatDoTheyKnow were easily accessible for other campaigning and democracy organisations to put into use.
More recently we’ve established a commercial partnership with Facebook to provide them with accurate and independent lists of candidates and elected representatives matched to their relevant Facebook profile pages for the UK, French and Kenyan elections.
There’s a wider benefit to this kind of commercial work, beyond its being a useful source of additional revenue for mySociety. More importantly, it will allow us to feed the data that we source back into the Democratic Commons. It can contribute to EveryPolitician and Wikidata, and even improve boundary data internationally through OpenStreetMap, which in turn powers our own Global MapIt service.
Why is this important now?
Well, it’s not just the rather obvious observation that working with other people is a good idea. The reality is that we need to face the fact that our Democratic practice is just not fully funded, and, as with WhatDoTheyKnow.com, at best we’ll need to consider how more of our services in the UK can be run and directly supported by volunteers and the wider community.
At worst it’s quite possible that we’ll be forced to close some of our popular UK services and restrict the further development of our democracy work internationally.
In April next year we come to the end of our six-year grant agreement with the Omidyar Network who have given us tremendous support over that time. This will leave a substantial hole in our core funding and it’s one reason why we’ve been so diligently focused on developing appropriate new commercial services like FixMyStreetPro and WhatDoTheyKnowPro.
Without sufficient unrestricted core funding — that is, funding which can be applied wherever in the organisation it is most needed — we need to rely much more on specific project funding wherever we can find it. In most cases, however, this project funding comes with its own set of tasks to deliver, and there’s a tendency to want new shiny things, rather than supporting the maintenance of our existing projects. This is especially true of our Democracy work which relies more heavily on grant funding than commercial alternatives.
Sensibly directing our own work more towards contributions to external projects is also a hedge, should we need to find new homes for our services or shutter them for the time being.
In the meantime we’ll be speaking to more funders who we hope might recognise the importance of supporting and building the essential infrastructure of the Democratic Commons, but in the event that isn’t forthcoming we’ll do what it takes to ensure our work to date continues to have some value and impact.
As we start to map out a path to a sustainable future for mySociety and its community, I’d appreciate all thoughts on where we go next with this — after all, we can’t do this without your help.
It’s only a few days now before we’ll be in Taipei, hosting an extra special edition of TICTeC, the Impacts of Civic Technology Conference — or TICTeC@Taipei as it’s snappily being called.
TICTeC@Taipei will be the headline event of Civic Tech Fest, Asia’s first ever festival celebrating all things Civic Tech. It’s also an official side event of the World Congress on Information Technology (WCIT), so TICTeC@Taipei attendees will also be able to attend the WCIT, and vice versa.
We’re super excited about not only TICTeC@Taipei and WCIT, but the other events that are happening during the festival too, which include g0v’s legendary hackathon, the Code for All Summit, State of the Map Taiwan, and Wikimedia Taiwan’s 10th anniversary event. In fact, our only concern is that there will be just too much to choose from!
We’re looking forward to reconnecting with friends and associates across the global Civic Tech scene, not to mention meeting new faces. It’s such a great opportunity to share ideas, learnings and experiences not just within our own community, but more widely with the WCIT crowd too.
Attendees will be coming from all around the world: check out the CivicTechFest Google Group to get a snapshot of who will be there. We’re delighted that we’ve been able to provide some travel grants to individuals who wouldn’t have been able to come without support, and we’re really looking forward to meeting them.
There is also time left to submit a proposal for the unconference part of TICTeC@Taipei. If you have a workshop idea, or want to share your Civic Tech story, you can propose an unconference session idea by filling out this form before 7th September. There will also be time to submit ideas in person on 11th September.
Feeling a bit envious of all the anticipated fun? There’s still time to register for TICTeC@Taipei, so if you fancy coming to the biggest Civic Tech gathering of the year, get your tickets here!
While we’re there, we’ll also be making a special announcement about TICTeC 2018. We’ll share it here as well, of course, so watch this space for more information!
In the past month over 4,600 Freedom of Information requests made via our site WhatDoTheyKnow resulted in information being released. Volunteer Molly Williams has picked out a few highlights.
The autopsy of Alexander Litvinenko
The autopsy of the former Russian spy who was killed in November 2006 by radioactive polonium-210, which is believed to have been slipped into his cup of tea on Putin’s orders, has been described by a pathologist as “the most dangerous post-mortem examination ever undertaken in the western world”.
An FOI request sent via WhatDoTheyKnow.com to Barts Health NHS Trust, whose care Litvinenko came under when he fell ill with the poisoning, revealed the detailed step-by-step procedure used to carry out his post-mortem safely. The examination determined how he was murdered.
Thousands of NHS and health bodies are listed on WhatDoTheyKnow, so if you have queries on the data they hold, it’s a great place to start.
Grenfell displaced person plans
An FOI request sent after the fire that killed 80 people and burned down a large block of flats in the Kensington and Chelsea area revealed the progress of plans to rehome those left homeless.
Some key details revealed were that:
- all regeneration plans have been put on hold in Kensington and Chelsea
- emergency hotel accommodation in Kensington and Chelsea was offered to all made homeless by the fire
- there were 179 offers of temporary accommodation made, of which 65 were accepted
- everyone affected has a dedicated Housing Officer to help them find a new home
- the council aim to rehome everyone who was made homeless by the fire by June 2018
Crime statistics at Leeds Festival
An FOI request sent via WhatDoTheyKnow revealed all the crimes reported from Leeds Festival over the past five years — including sexual offences, drugs, and fraud. It also showed that 2016, the latest year for which statistics were available, was the worst year for crime at the festival, with 200 offences reported. See the request and the full stats here.
Letter from Chris Grayling ordering GTR to fund a £13.4 million improvement to Southern Rail
How do you phrase a difficult letter? After it was quoted in national media, a message from Transport Secretary Chris Grayling, fining Govia Thameslink Railway for £13.4 million, is now available in full for everyone to read.
In the letter Grayling stated that “passengers who depend on Southern have been badly let down” and went on to outline what the money will be spent on, including more on-board staff and £7m on “improvements that will directly benefit passengers”.
There are five railways companies listed on WhatDoTheyKnow. Not all of them are subject to FOI, but we list them anyway because we believe them to be subject to the less-known Environmental Information Regulations (EIR). And of course, as in the case mentioned above, you can always request information from public bodies which correspond with, or contract, organisations not covered by FOI.
Supernatural crime reports in the West Midlands
A requester asked for any reports on “ghosts, werewolves, witches, aliens, zombies and the like” to the West Midlands Police. Think this is a frivolous question? Well, in the past 12 months no fewer than 10 supernatural sightings have been filed. Following the response, the requester asked for further information on these mysterious sightings and is currently awaiting more detail.
Football in Worcester
A request revealed, within a series of released email correspondence, plans to build a community sports stadium and relocate 3D artificial turf playing fields. It also showed the decision process taken, including consideration of the possible effects on the local area. Read what’s happening to football in Worcester here.
If you want to know more about Sport England’s plans in your local community, you can send an information request to them via WhatDoTheyKnow.
Seabird and raptor monitoring on the Isle of Rum
An FOI request sent to Scottish Natural Heritage revealed details of their monitoring of seabirds and raptors including which species they track, their monitoring methods, and research aims.
Read the details of the methods, findings and staff involved in the monitoring of these incredible birds on our site, here.
Platelet donors and donations
Information released by NHS Blood and Donations under FOI revealed how the number of platelet donors and donations has been gradually decreasing since 2010. When responding, the public body helpfully explained the trend in the statistics:
“NHS Blood and Transplant has gradually reduced the amount of platelets it collects from platelet apheresis donations and increased the amount of platelets it collects by pooling whole blood donations from whole blood donors. This follows the 2013 recommendation made by the Department of Health’s Independent Advisory Committee on the Safety of Blood, Tissues and Organs (SaBTO) to remove the requirement to provide 80% of platelets to hospitals by apheresis”.
FOI numbers and staff
You can even send an FOI request about the handling of FOIs! One requester asked for how many requests to Knowsley Metropolitan Borough Council were received in the past three years and the number of staff who deal with them.
There were a total of 3,160 requests but no designated team dealing with them, which may simply suggest there is an FOI culture embedded throughout the organisation, where the role is combined with other jobs. Read the full response here, and if you, too have a question about FOI requests you might like to send an FOI request via WhatDoTheyKnow.com.
LocalGovCamp will soon be upon us, so we thought we’d share a few thoughts about why this event, and similar unconferences, are important — and why we at mySociety wanted to support this one.
This immediately throws up a couple of questions for the uninitiated.
What is an unconference?
There are quite a few definitions of ‘unconferences’ out there but all that really matters is that it’s an event where the participants design the agenda on the day, the sessions are informal (eg slidedecks are discouraged) and the law of two feet is encouraged.
This video – itself from an early LocalGovCamp – does a good job of getting the concept across:
What is LocalGovCamp?
Well, LocalGovCamp is the largest and longest running ‘unconference’ for people who work in or are interested in local government. It has been an annual event since 2009 with attendees giving up their Saturdays to travel to various locations across the UK to contribute to the day, listen and learn.
What is special about unconferences?
There is a certain magic that occurs at these events when you bring a group of like-minded souls together, in their own time, without the constraints of a prearranged agenda that really fosters a community spirit that has a lasting effect. Useful as the sessions are, it is often the opportunity to find your tribe, to share war stories and to just speak to people who understand what you are working on that is what you come away remembering. A certain amount of unconference as group therapy is certainly not unusual.
The thing is these connections, these networks that spawn from such events can have real power. They can be impressive catalysts for change and the days when the attendee lists were junior staff lamenting the lack of decision-makers in the room are gone – at a recent central government GovCamp two Permanent Secretaries attended and at this upcoming LocalGovCamp the newly announced first Chief Digital Officer for London will be there, amongst other senior leaders.
Local government is obviously something that mySociety is passionate about – our FixMyStreet service in particular is entirely embedded in that domain – and we were keen to help sponsor the event this year… and not just because getting a ticket to attend is like gold dust! We’re really looking forward to meeting and chatting to friends old and new, finding out what are the big challenges (and opportunities) facing teams in local government at the moment and hopefully contributing to a few sessions.
Last Saturday (August 19th) at Newspeak House in London, mySociety and Wikimedia UK held the “Wikifying Westminster” workshop, a day-long event to encourage people to get involved with Wikidata, but also to give a taste of what people can build with the data that is already there.
The vision: one day, complex investigations which currently take researchers a lot of time, such as “how many MPs are descended from people who were also MPs” or “how many people named X were MPs in year Y”, will be answerable with data from Wikidata using a single SPARQL query…
…but we’re not quite there yet. Currently, some data is scattered all over separate databases (which sometimes get shut down or disappear); some is just plain missing; and most frustrating of all, some is in place but there’s no apparent way to get it out of the database.
In order to make this vision a reality, we need to experiment with the data, find ways to check how complete it is, and explore what questions we can currently answer with it. Events like Wikifying Westminster are the perfect opportunity to do just that.
After a brief introduction to Wikidata and the EveryPolitician project, we split into two groups: one focused on learning how to use Wikidata, while the other focused on working on mini-projects.
Here’s a taste of what happened…
The learning track began by introducing new users to the basic Wikidata editing principles (or “getting data into Wikidata”). Participants were able to put their new skills into action immediately, by adding missing data on British MPs, who were mostly lacking dates and places of birth.
By the end of the first session, good progress had been made, particularly on obtaining dates of birth for current British parliamentarians. For some reason, though, it proved much harder to find these for women than for men: we can only speculate as to why that might be (do some still adhere to the idea that a woman shouldn’t reveal her age?!).
We were also given an introduction to SPARQL, a language used to query information on databases (or “getting data out of Wikidata”). Lucas Werkmeister introduced the Wikidata query service and explained a few tricks to help with using it. Participants were later able to put this to the test by running progressively difficult test queries such as “All current UK MPs” or “Who is the youngest current MP?”
Also, Navino Evans showed us the potential of reusing data, talking about Histropedia, which he co-created with Sean McBirnie. Histropedia is an awesome tool that lets you visualise thousands of topics on interactive timelines: you can browse through existing ones or create a new one from scratch.
This group both worked on improving data and looked at how well we could answer some simple “stepping stone” queries (i.e. small questions to which we already knew some of the answers) as a heuristic of how good the data in Wikidata already is. You can see and contribute questions to the list of test queries here.
Some more details:
Improving data. The focus here was on the Northern Ireland Assembly, for which Wikidata now has full membership history back to the foundation of the Assembly, and on adding academic degrees of cabinet ministers. Starting from an excellent spreadsheet of the undergraduate universities and subjects of UK politicians and ministers (going back to John Major’s cabinets), we tried to upload that data on the relevant items, adding the qualifier “academic major” (P812) to the property “educated at” (P69). In this case, the key problem we found was that we weren’t sure how to model when people did joint subjects, like “Maths and Politics”, convincing us to concentrate on the more obvious subjects first.
Answering some unusual and/or intriguing questions. Inspired by a prior finding that there are more FTSE 100 CEOs named John than there are female ones, and that John is historically the most common name of UK parliamentarians, we thought we’d find out when exactly the John-to-female balance was toppled amongst the UK’s MPs (hint: not until 1992).
Going back further in history, we queried the first time each given name was recorded in Parliament, this was inspired by a recent news article about an MP who claimed he was the first “Darren” in the Commons.
Some ideas were also born that we weren’t able to see through, for various reasons. For example, could we discover which, if any, MPs are descended from people listed in the UCL’s ‘Legacy of British Slave-owners’ database? An interesting question, but at the moment, the answer is ‘no’, partly because child-parent relationships are currently inconsistently modelled in Wikidata, and partly because of the nature of Wikidata and ancestry: if there is someone who doesn’t exist in Wikidata (e.g. Grandad Bob, the painter) in the family chain, Wikidata can’t bridge the gap between a present day MP and the slave owner who might be their ancestor.
This is just the beginning
Work, of course, is still ongoing: all pre-1997 UK data is still to be inserted or improved on Wikidata, and so much more is missing – family connections, academic degrees, links to other databases, and all sorts of “unusual stuff” that can be used for interesting queries.
This data is crucial if we want to be able to answer the really big questions which Wikidata should one day be capable of helping us explore, about what politicians do.
We can do that together!
We hope that events like this give people an easy way in to Wikidata and also show them what’s already possible to achieve with the data. Over the coming months, we are hoping to support more events of this type around the world. If you are interested in getting involved, here’s how:
- Want to improve your country’s data? Events like this can be a great way to help kickstart activities and find other people who share your goals. We are happy to help out and support people in other countries to do so.
- Are you already organising or planning to organise a similar workshop around Wikidata? Make sure it is listed on the Wikidata Event page!
- Do you want to attend future workshops? Follow us on Twitter to stay updated about events that we are running, and ones that other people are too!
We’re also always looking for feedback and suggestions on workshop and event formats that might also work. Have you already run similar workshops? Let us know your impressions and suggestions on firstname.lastname@example.org!
Feature image credits: Mark Longair
Jenna Corderoy, Alaveteli Professional Advocate, brings us an update on the project.
Since our last blog post on Alaveteli Professional — our Freedom of Information toolkit for journalists, campaigners and activists — there have been a few exciting developments.
The batch request feature is coming along nicely: this will allow users of the service to send one Freedom of Information request to multiple authorities and help them to easily manage large volumes of responses.
We’re going to be working with a small group of our beta testers to develop this feature and make sure we release it in a useful and responsible form (click here to apply as a beta tester and get a year’s free access to WhatDoTheyKnowPro, the UK version of the service).
We’ve been pleased to see the first news story to emerge as the result of a request made through WhatDoTheyKnowPro: a response to the Foreign and Commonwealth Office showed which are the countries where UK holidaymakers are most likely to get arrested. The full list was covered in the Birmingham Mail.
But we also have plans for this Freedom of Information toolkit to go international: Alaveteli Professional will be a bolt-on option for anyone already running an FOI site on our software platform Alaveteli.
In April, mySociety team members traveled to roll out the first such project, with Info Pro Všechny, the Czech Republic’s Alaveteli site.
We were able to introduce beta users to the features we’ve been developing, such as the ability to keep requests private until the story has been published.
While in the Czech Republic, we held a roundtable discussion with journalists and campaigners, swapping Freedom of Information battle stories and sharing tips and tricks for getting the best results when submitting requests for information, as well as experiences of filing requests to European Union institutions.
mySociety was also invited to give a talk to student journalists based in Olomouc about Info Pro Všechny and Alaveteli Professional in general, discussing success stories generated from our Freedom of Information sites from around the world.
We’re currently working on subscription options, which will allow us to officially launch WhatDoTheyKnowPro as a paid-for service in the UK, and later in the year, we plan to introduce the Pro toolkit to the Belgian Alaveteli site Transparencia.be, which has been making a splash in Belgian politics.
If you’re in a wheelchair, it can be tricky enough getting around. So it’s particularly disappointing to learn that some taxi firms charge wheelchair passengers extra, and that some drivers refuse to take passengers in wheelchairs at all.
If you’re thinking ‘surely that’s illegal’ — well, it is. Only from quite recently, though: it was last April that a law came in which imposed a £1,000 fine for drivers who refused or charged extra for those in wheelchairs.
But there’s a complication. This fine can only be imposed by councils who keep a designated list of all wheelchair-accessible public hire vehicles: no list, no fines.
Does it matter? Well, that depends on how many councils are intending to compile the list. And as WhatDoTheyKnow volunteer Doug Paulley knows very well, there’s one good way to find out information from every local authority: via a Freedom of Information request.
Doug used WhatDoTheyKnow to submit FoI requests to all 366 taxi licensing councils, and Transport for London, who administer taxi licensing on behalf of all the London boroughs. The results of his research can be seen in full here, or you can quickly check your own local council on this map.
As indicated, if your council is one of the 59% who, by not keeping a list, are unable to implement the anti-discrimination law, you might like to contact your councillors to let them know how you feel about that.
You may know Dr Ben Goldacre from his ‘Bad Science’ and ‘Bad Pharma’ campaigns, which fight misinformation around medicine. Ben has just launched his latest project, the AllTrials Transparency Index — and mySociety helped with the website side of things.
The AllTrials campaign focuses around the fact that a shockingly large proportion of clinical trials do not have their results publicly published.
Not only does this devalue the time, goodwill and even potential risk put in by participants, but there are also issues around bias. Those trials published tend to be the ones which show positive results: if that doesn’t sound like such a terrible situation to you, try playing this game from the Economist magazine, which graphically depicts the problems with skewed coverage. At worst, such selective publication can be dangerous, or lead to poor choices from bodies making medical purchasing decisions.
Transparency and data visualisation are two areas where mySociety has a long history, and so it came to be that we fashioned the deceptively simple AllTrials Transparency Index site, on which anyone can browse the transparency index of the world’s major drug companies, and dive in deeper to the data to see how it was compiled. The source data is free for others to download too, so anyone can integrate it into other projects.
AllTrials are also tracking whether companies register new trials:
That’s the part that anyone can understand — and now, notes for the more technically-inclined who may be wondering how we took the data on each drugs company and presented it in a way that can be quickly and easily taken in.
This is an ongoing campaign with a commitment to future audits, so we wanted to make it easy for the AllTrials team to update the site and republish the source data each time they do.
It’s a static Jekyll site. We wrote a custom plug-in to parse a CSV and produce a page for each company within that CSV, as well as creating some summary data that feeds into the graphs on the front page.
This data is then pulled from the CSV, and D3 is employed to build the graphs and insert them into the generated pages.
The end result is a site that looks good and which can automatically update whenever the underlying data changes. We hope we’ll have played a small part in helping to ensure that it does — and for the better.
What would Eddie Grundy do if he came across a pothole? And how would Linda Snell deal with flytipping on the site of the Ambridge village fete?
Fortunately, these fictional characters now enjoy the same access to FixMyStreet as the rest of us, thanks to the new demo site we’ve built.
The thinking behind it is not, of course, to gather reports from an entirely fictional world. We’re not that mad. Rather, we needed a sandbox interface where we could show councils exactly how FixMyStreet works, and allow them to play about with both the customer end and the admin side, all without causing any major repercussions to the running of the standard site. Enter FixMyStreet Borsetshire.
Prospective buyers of the system from local councils can experience the various levels of administration that the back-end allows. Just log in with the credentials seen on this page and see exactly how reports can be shortlisted, actioned, or moderated.
So, we’re expecting reports of pigs on the loose, flooded culverts and perhaps even a flying flapjack. But if you’re hoping to find out the precise location of Ambridge, unfortunately you’ll be disappointed: the map is actually centred around Chipping Sodbury, far from the village’s supposed Midlands locale.